ERNICA Evidence-Based Guideline on Surgical Aspects of Necrotizing Enterocolitis in Premature Neonates

Necrotizing enterocolitis (NEC) is a severe intestinal condition primarily affecting preterm neonates. It has a high mortality rate, particularly in infants with a birthweight of below 1,500 g or for those requiring surg…

ERNICA Clinical Consensus Statements on Total Colonic and Intestinal Aganglionosis

Background: Hirschsprung disease is a congenital intestinal motility disorder characterized by an absence of enteric ganglion cells. Total colonic aganglionosis and near total or total intestinal aganglionosis, defined a…

Giant omphalocele treatment with a nonsurgical silo made of Duoderm

CDH: What should we tell parents?

ERNICA Research Catalogue

Hirschsprung-associated enterocolitis in children: An ERNICA animation for parents and families

Animation video [in English]. Target audience: Parents and families. The video could also be used as an explanatory tool by healthcare professionals. For further details about this condition, possible complications and s…

Surgical treatment for Hirschsprung’s Disease: An ERNICA animation for parents and families

Animation video [in English]. Target audience: Parents and families. The video could also be used as an explanatory tool by healthcare professionals. This is an ERNICA animation. Please consult your own care provider for…

What is Congenital Diaphragmatic Hernia (CDH)? An ERNICA animation for parents and families

Animation video [in English]. Target audience: Parents and families. The video could also be used as an explanatory tool by healthcare professionals. For further details about this condition, possible complications and s…

What is Gastroschisis? An ERNICA animation for parents and families

Animation video [in English]. Target audience: Parents and families. The video could also be used as an explanatory tool by healthcare professionals. For further details about this condition, possible complications and s…

What is Omphalocele? An ERNICA animation for parents and families

Animation video [in English]. Target audience: Parents and families. The video could also be used as an explanatory tool by healthcare professionals. For further details about this condition, possible complications and s…

How is Hirschsprung's Disease diagnosed? An ERNICA animation for parents and families

Animation video [in English]. Target audience: Parents and families. The video could also be used as an explanatory tool by healthcare professionals. This is an ERNICA animation. Please consult your own care provider for…

What is small bowel atresia?: An ERNICA animation for parents and families

Animation video [in English]. Target audience: Parents and families. The video could also be used as an explanatory tool by healthcare professionals. For further details about this condition, possible complications and s…

Disconnecting the parenteral nutrition infusion for children at home: An ERNICA animation

Animation video [in English]. Target audience: Parents and families. The video could also be used as an explanatory tool by healthcare professionals. Always refer to your own care provider for the local protocol. This an…

Reliance on total parenteral nutrition (TPN) and travelling abroad

Intestinal failure in children: Reliance on total parenteral nutrition (TPN) and travelling abroad - An ERNICA animation for patients and families Click here to access the tool and find out more information: https://www.…

What is Hirschsprung's Disease? An ERNICA animation for parents and families

Animation video [in English]. Target audience: Parents and families. The video could also be used as an explanatory tool by healthcare professionals. For further details about this condition, possible complications and s…

ERNICA Research Collaboration - Mental health of parents in the context of EA/TOF

The title of this webinar is: Research findings on mental health of parents in the context of esophageal atresia (EA) / tracheoesophageal fistula (TEF): recommendations for digitalised psychological support. This interac…

Patient Journey Rectosigmoid Hirschsprung's Disease

The Patient Journey for Rectosigmoid Hirschsprung’s Disease promotes better understanding of this rare congenital disease and aims to support communication between clinicians, parents and patients. It gives an overview o…

Transition of care: Initial impressions from the Erasmus MC

An Erasmus MC - ERNICA video explaining the programmes currently in place to support pediatric patients with congenital anomalies transition to adult care at Erasmus Medical Centre (Erasmus MC), Rotterdam, The Netherland…

Transition of Care - A general overview by Silja Kosolove

Video on on a general overview of transition of care by Silja Kosolove (Chapter 1 of the Helsinki series). ERNICA (https://ern-ernica.eu/)

Transition of Care - Sexuality

Animation video on Sexuality, from the video series 'Transition of Care'. ERNICA (https://ern-ernica.eu/) Target audience: Healthcare providers

Transition of Care - Parent-child interactions

Animation video on Parent-child interactions, from the video series 'Transition of Care'. ERNICA (https://ern-ernica.eu/) Target audience: Healthcare providers

Transition of Care - Alcohol and Smoking

  Animation video on Alcohol and Smoking, from the video series 'Transition of Care'. ERNICA (https://ern-ernica.eu/) Target audience: Healthcare providers

Esophageal Dilation for children with Esophageal Atresia

Animation video [in English]. Target audience: Parents and families. The video could also be used as an explanatory tool by healthcare professionals. This is an ERNICA animation. Please consult your own care provider for…

What is Esophageal Achalasia? An ERNICA animation for patients, parents and families

Animation video [in English]. Target audience: Patients, parents and families. The video could also be used as an explanatory tool by healthcare professionals. For further details about this condition, possible complicat…

ERNICA Research Collaboration Webinar on Quality of Life

The aim of the webinar is to provide an overview of the concepts “patient-reported outcome, quality of life and health-related quality of life” and how the quality of life (QoL) and health-related quality of life (HRQoL)…

Care and Nutrition in Esophageal Atresia: An ERNICA animation for parents and families

Animation video [in English]. Target audience: Parents and families. The video could also be used as an explanatory tool by healthcare professionals. This is an ERNICA animation. Please consult your own care provider for…

Quality of life in relation to eating in children and adults born with esophageal atresia - ERNICA Research Collaboration

The title of this webinar is: Eat to live, or live to eat? - Quality of life in relation to eating in children and adults born with esophageal atresia. This interactive webinar will explore quality of life in relation to…

LIFE - Lifelong Follow up for Esophageal atresia

Animation video [in English]. Target audience: Patients, parents and families. The video could also be used as an explanatory tool by healthcare professionals. This is an ERNICA animation. Please consult your own care pr…

ERNICA Research Collaboration Webinar in Clinical Trials

Starting a multicenter and international trial is a process with challenges and pitfalls. Clinical trials with patients with a rare disease are maybe even more difficult. At the same time ERNICA can strengthen clinical t…

STEPS-EA trial: Esophageal Atresia

GERD - (GastroEsophageal) REFLUX (Disease) in Esophageal Atresia Patients: An ERNICA animation

Animation video [in English]. Target audience: Parents and families. The video could also be used as an explanatory tool by healthcare professionals. This is an ERNICA animation. Please consult your own care provider for…

Rectosigmoid Hirschsprung’s Disease - ERNICA guidelines

ERNICA guidelines for the management of Rectosigmoid Hirschsprung’s Disease Background: Hirschsprung’s disease (HSCR) is a serious congenital bowel disorder with a prevalence of 1/5000. Currently, there is a lack of syst…

Long-Gap Esophageal Atresia: Perioperative, Surgical, and Long-Term Management - ERNICA Consensus Conference

ERNICA Consensus Conference on the Management of Patients with Long-Gap Esophageal Atresia: Perioperative, Surgical, and Long-Term Management Introduction: Evidence supporting best practice for long-gap esophageal atresi…

Esophageal Atresia and Tracheoesophageal Fistula: Follow-up and Framework - ERNICA Consensus Conference

ERNICA Consensus Conference on the Management of Patients with Esophageal Atresia and Tracheoesophageal Fistula: Follow-up and Framework Introduction: Improvements in care of patients with esophageal atresia (EA) and tra…

Esophageal Atresia and Tracheoesophageal Fistula: Diagnostics, Preoperative, Operative, and Postoperative Management - ERNICA Consensus Conference

ERNICA Consensus Conference on the Management of Patients with Esophageal Atresia and Tracheoesophageal Fistula: Diagnostics, Preoperative, Operative, and Postoperative Management  Introduction: Many aspects of the manag…

Anorectal Malformation

EA/TEF Quiz

RADIATION EMERGENCY MANAGEMENT

RADIATION EMERGENCY MANAGEMENT

Anorectal Malformation

EA/TEF Quiz

Ukraine Presentation – Blast Injury Protocol Slide deck

Translated Blast Injury Protocols (Ukrainian)

Blast Injury Protocol Slide deck (Translated into Ukrainian)

Congenital Diaphragmatic Hernia

Congenital Diaphragmatic Hernia

EPSITE Winter 2020 Answers

EPSITE Winter 2020