What is Gastroschisis? An ERNICA animation for parents and families

Gastroschisis occurs when the front of a baby's belly does not form properly during early pregnancy, resulting in an opening on the right side of the belly button through which the intestines pass.

Gastroschisis is classed as a rare birth defect.

The cause of gastroschisis is unknown.

Gastroschisis may mean that the intestines are not able to work properly.

Gastroschisis is not usually associated with other malformations.

A diagnosis of gastroschisis can be made before birth using ultrasound.

Many babies with gastroschisis are born prematurely (before 37 weeks).

Ongoing care for babies with gastroschisis should be provided at a specialist center by a dedicated team of professionals with knowledge and experience of the condition.

Gastroschisis is a serious condition and can be life threatening for the baby before and after birth as a newborn.

Most babies with gastroschisis do survive.

Some babies with gastroschisis may be transferred to a dedicated intensive care unit if they are born prematurely.

After birth, the baby's intestines are wrapped in a sterile bag to avoid damage.

Babies with gastroschisis receive the fluid they need via a tube that delivers it through a vein.

When the baby is stable, surgery is performed to place the intestines back in the belly and close the opening.

Surgical repair can be done in one operation (primary repair) or in several steps (staged repair), depending on the baby's circumstances and severity of gastroschisis.

Further surgery may be needed if other malformations are also present.

While the intestines recover, the baby receives feed through a tube that delivers it through a vein, a method called parenteral nutrition.

Hospital stay duration differs depending on the severity of gastroschisis, any complications, and how well the baby responds to treatment, often ranging between 2 to 10 weeks but may be longer.

Follow-up care by a multidisciplinary team (MDT) of different clinical specialists is required to monitor the baby's growth and development.

Some babies may experience ongoing difficulties that require different types and levels of care.

Identifying any complications or difficulties early is very important.

Some babies may require parenteral nutrition for a longer period to promote continued growth.

Peer support can be accessed through patient and family support groups.